Growing up with 23 signs you grew up with ehlers-danlos syndrome (EDS) is a unique experience, often marked by a life-time of undetermined symptoms, shop at visits, and a feel of being different from your peers. Ehlers-Danlos Syndrome is a aggroup of connective weave disorders that regard the body s , leadership to symptoms like hypermobility, chronic pain, weak skin, and more. For many, the travel to diagnosis is long and occupied with mix-up, but looking back, the signs were often there all along.

If you re recitation this, you might be curious if your childhood experiences ordinate with those of others who have EDS. Here are 23 signs you grew up with Ehlers-Danlos Syndrome some you may recognize, and others that might help you feel less alone in your journey.

1. You Were the Flexible Kid

From a youth age, you could do things with your body that astonished(and sometimes afraid) your friends and family. Splits, poses, and double-jointed tricks were your political party pieces. You might have been praised for your tractableness in dance or gymanstic exercise, or plainly used it to entertain classmates. What you didn t know was that this hypermobility was a trademark of EDS.

2. Frequent Sprains, Strains, and Dislocations

While your tractableness was telling, it came at a cost. You were no stranger to sprained ankles, twined knees, or even joints that popped out of target. Sometimes, these injuries happened during sports, but often they occurred during routine activities like turning a doorhandle or rolling over in bed.

3. Chronic Pain Was Your Normal

Growing up, you often felt aches and nisus that others didn t seem to see. Your joints, muscles, and even your skin could hurt for no seeming conclude. You might have been told it was development nisus or that you were exaggerating, but the discomfort was real and relentless.

4. Your Skin Bruised and Tore Easily

You nonheritable early on on that your skin was more fragile than most. A tyke bump could result a dramatic spit, and a simple scrape could turn into a considerable wound. Bandages were a staple fiber in your family, and you may have scars from injuries that seemed shaver at the time.

5. Slow Healing and Unusual Scarring

Not only did you injure easily, but your wounds also took thirster to heal. When they did, the scars were often thin, wide, or coffin nail wallpaper in appearance. Sometimes, stitches didn t hold well, and you might have needed extra care after even youngster procedures.

6. You Were Always Tired

Fatigue was a constant accompany. No count how much you slept, you often felt drained. This wasn t just the fatigue that comes from a busy day it was a deep, relentless fag out that made it hard to keep up with your peers.

7. Clumsiness and Poor Coordination

You may have been labelled ungainly or chance event-prone. Tripping, dropping things, or bumping into furniture was a fixture occurrence. This wasn t just bad luck EDS can involve proprioception(your feel of body put off), qualification more challenging.

8. Digestive Issues Were Common

Stomachaches, deadening, bloating, and food intolerances were part of your life. Many people with EDS experience canal problems, sometimes diagnosed as irritable bowel syndrome(IBS) or other usefulness GI disorders.

9. You Had Trouble Sitting or Standing Still

Sitting in one pose for too long could make your joints ache or even go numb. Standing for outspread periods often led to giddiness, dizziness, or even fainting. You may have been accused of being antsy or ineffective to pay attention, but your body plainly couldn t stomach stillness.

10. You Were Sensitive to Temperature and Pain

You noticed that you felt cold more well than others, or that hot weather made you feel swoon. Pain from injuries or checkup procedures seemed more intense, and you might have had a low pain limen or, conversely, a high tolerance due to constant uncomfortableness.

2. Frequent Sprains, Strains, and Dislocations

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Trips to the dentist were rarely subprogram. You may have had packed dentition, a high palate, shop cavities, or issues with your jaw clicking or locking(TMJ disfunction). Dental work could be more complex due to flimsy tissues and slow sanative.

2. Frequent Sprains, Strains, and Dislocations

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Your skin was spiritualist not just to injury, but also to the sun and various products. Sunburns happened rapidly, and you might have reacted to lotions, soaps, or even certain fabrics. Allergies and sensitivities were common, sometimes leadership to urtication or rashes.

2. Frequent Sprains, Strains, and Dislocations

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You detected extend Marks on your skin, even if you hadn t gained or lost significant weight. These Marks, often on the thighs, hips, or shoulders, were a lead of your skin s low elasticity a sign of EDS.

2. Frequent Sprains, Strains, and Dislocations

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Headaches were a fixture part of your life, sometimes escalating to migraines. These could be triggered by try, lack of slumber, or seemingly no conclude at all. Some people with EDS also go through cervicogenic headaches, caused by instability in the neck.

2. Frequent Sprains, Strains, and Dislocations

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You may have seasoned episodes of anxiety, fast beat, or even fainting, especially when regular up chop-chop. These symptoms can be accompanying to dysautonomia, a common co-condition in EDS that affects the involuntary tense system.

2. Frequent Sprains, Strains, and Dislocations

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While you might have excelled in activities requiring tractableness, you struggled with sports that demanded effectiveness, endurance, or coordination. Running, jumping, or even walking long distances could leave you in pain or drained.

2. Frequent Sprains, Strains, and Dislocations

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You may have needful specialized place, insoles, or braces to support your feet and ankles. Flat feet, high arches, or other biological science issues were common, and you often grew out of orthotics as your needs metamorphic.

2. Frequent Sprains, Strains, and Dislocations

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Looking around your family, you may have noticed others with hypermobility, prolonged pain, or similar health issues. EDS is genic, so it s not uncommon to see patterns across generations, even if no one had a evening gown diagnosis.

2. Frequent Sprains, Strains, and Dislocations

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Frequent absences due to pain, tire, or medical checkup appointments made cultivate stimulating. You may have incomprehensible out on mixer events or unchaste behind academically, leadership to foiling or feelings of closing off.

2. Frequent Sprains, Strains, and Dislocations

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Perhaps the most disobedient part of maturation up with EDS was not being believed. Doctors, teachers, and even family members may have discharged your symptoms as all in your head, ontogeny pains, or aid-seeking. The lack of understanding and substantiation could be profoundly hurtful.

3. Chronic Pain Was Your Normal

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Out of requirement, you nonheritable to research your symptoms, keep elaborated records, and push for answers. You became an expert in your own health, often educating doctors and others about EDS and related conditions.

3. Chronic Pain Was Your Normal

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Living with EDS meant finding inventive ways to adjust. You noninheritable to qualify activities, use helpful devices, and pace yourself to avoid wound or . Your resiliency and adaptability became some of your sterling strengths.

3. Chronic Pain Was Your Normal

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Finally, after old age of mix-up and struggle, receiving a diagnosis of Ehlers-Danlos Syndrome brought a mix of emotions. Relief at having an explanation for your symptoms, but also sorrow for the eld expended searching for answers and the challenges that lay in the lead.

3. Chronic Pain Was Your Normal

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Growing up with Ehlers-Danlos Syndrome is a travel occupied with challenges, but also with resiliency, imagination, and community. While the signs and symptoms can be irresistible, sympathy your body and copulative with others who partake your experiences can make a earth of difference.

Tips for Managing EDS as an Adult

• Find Knowledgeable Healthcare Providers: Seek out doctors, natural science therapists, and specialists familiar spirit with EDS.
• Prioritize Self-Care: Listen to your body, rest when needed, and don t be afraid to set boundaries.
• Use Assistive Devices: Braces, orthotics, and mobility aids can help keep wound and ameliorate timbre of life.
• Connect with the EDS Community: Online forums, support groups, and advocacy organizations offer worthy resources and sympathy.
• Educate Others: Share selective information about EDS with friends, syndicate, and colleagues to nurture and support.

The Importance of Early Diagnosis

Early realisation of EDS can prevent eld of extra pain and wound. If you recognize these signs in yourself or a worshipped one, consider quest evaluation from a geneticist or rheumatologist familiar spirit with connector tissue disorders. Early interference, physical therapy, and lifestyle modifications can make a significant remainder in long-term wellness and well-being.

You Are Not Alone

Perhaps the most portentous matter to think of is that you are not alone. Thousands of people around the world share your experiences, and the EDS is maturation stronger every day. By sharing your news report and supporting one another, you help raise awareness and improve the lives of everyone constrained by Ehlers-Danlos Syndrome.

3. Chronic Pain Was Your Normal

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Growing up with Ehlers-Danlos Syndrome is not easy, but it shapes you in unusual and mighty ways. The 23 signs listed above are just a coup d’oeil into the daily realities of livelihood with EDS, but they also highlight the effectiveness, adaptability, and courageousness of those who walk this path.

If you see yourself in these signs, know that your experiences are unexpired, your pain is real, and your travel matters. With the right support, noesis, and community, you can thrive with Ehlers-Danlos Syndrome and help others do the same.

If you surmise you or a worshipped one may have Ehlers-Danlos Syndrome, look up a health care professional for evaluation and support. For more information, travel to the Ehlers-Danlos Society at ehlers-danlos.com.

This article is for informational purposes only and does not constitute health chec advice. Always look up a qualified health care provider for diagnosis and handling of Ehlers-Danlos Syndrome or any other health chec condition.